Wow! It seems like forever since I've been able to blog. So I thought I would take a moment tonight and let you know what was going on over here. I've missed blogging. I've missed hearing from you. I'm sorry if this gets a little long....there's a lot going on right now. lol
I have recently gone to a new ENT specialist. He is actually a pediatric specialist and all he deals with is teeny tiny airways. He is very confident that with more surgery he can give me about 30% more airway. That's the good news. The surgery that he recommends is taking a portion of my rib and placing it in the back of my throat to force it open. It's a long surgery and has significant risk involved.
A couple of the risk factors being:
1. Loss of voice. Probably just a little breathy sounding, but possibly full loss. Although total loss is unlikely. A permanent trach is a risk none the less.
2. Aspirations. According to him I might have slight aspirations that would go away after a few months....but possibly never. The swallowing system in our bodies is a complex one that involves 4 lines of defense so that food and liquid doesn't get down into our lungs. I would lose one of those defenses, but still have 3 intact. So I might choke every time I drink water, but not so bad that I get pneumonia all the time.
Some other things to be prayerful about, things that I'm struggling with:
I will be fully intubated for approx 1 week following surgery. Not sure whether that would be nasal intubation or oral. I will have to have restraints on my arms, holding me in bed, to prevent me from ripping my tubes out. Doesn't THAT sound like fun?!?! lol Obviously, I will be unable to talk, move, eat or breathe on my own for 1 week. To be completely honest, it terrifies me. I am constantly taking control of my thoughts and keeping myself busy! God has been good to me and I have had no trouble falling asleep. I am believing God that His presence will fill my room and that I will not be afraid, panicky, and anxious when I wake up. Not here at home, and not in the hospital after surgery!
I've been told that the rib "injury" could be pretty painful. I'm believing for supernatural healing there. I will have lifting restrictions, so I don't know when I will be able to do daycare again.
Since all of that has been scheduled I have also decided to get a second opinion. The country's foremost experts in "Adult Airway Reconstruction" are in Cincinnati. My brother and I have been on the phone with them and they have agreed to see me and give me a full evaluation.
Right now we're just waiting. I have given them all my insurance information and they are handling that part of it from their end. They see patients from all over the world, so they know what they're doing. Once it's approved, I'll get a call from their office setting up the appt. It will be a 4 day visit with lots of testing. But we'll get their evaluation right away on that 4th day.
I've been reading about the children of Israel throughout the old testament. How they are speaking to me! How many times did God tell Joshua to be strong and of good courage?!?! He wouldn't have needed to tell him that if what he was facing wasn't scary! So bottom line.....I know that my God is GOOD! He has never let me down, and I have no reason to start doubting Him now. I will not be like the children of Israel who doubted, whined, cried, and turned from God when things got tough or they didn't understand. He is faithful and His Grace is sufficient FOR ME!
Thank you for your prayers and support. I really appreciate it!